Spoiled???

So before David was born a friend told he would be a spoiled boy. I said no way but you know she could have been right.

Understanding Multisensory Issues...

Our local channel last night had a news article about Sensory Processing issues in children. This is exactly what we are working on with David. It is hard for outsiders to see or understand but when you live with it, it can be very frustating at times. Hope this gives insite into our world and daily life. For those who ever thought why don't they...

http://www.king5.com/video/eveningmagazine-index.html?nvid=248082&shu=1

So Far So Good...

Darell is tolerating this past chemo treatment better then last time. Praise God! He went to work Monday morning but when he got there he descided he wasn't ready so he came back home. I hope this next treatment will not only be his last one needed but that he just takes that Monday and recovers. He should have called in Sunday that he was not coming in on Monday, anyway what can you do. He wanted to give it a try.

We have a nice Mother's Day weekend. David and I went out with my mom to the Farmer's Market Saturday morning. David was disappointed because he was looking for the Farmer in the Dell. He kept asking up where he could be. He gets his mind set and that is that. We then had a nice gathering at my mom's for BBQ dinner with Darell's parents, my brother's family and my brother's mother-in-law. Sunday we just relaxed at home. We had Papa Murphy Pizza and Blizzards. Nice weekend.

David is making some progress with his eating challenges and doing great with his potty training!

A fun decision we made was to throw caution to the wind and are going to Disneyland. The deal was affordable and how can you say no to Disneyland!

Doctor's update...

We got the results of the CAT scan yesterday. Good news this time. No it’s not gone yet but is responding well to the chemo. We really don’t know if Darell will have 6 or 8 treatments but there is a noticeable shrinkage in the tumors. So the plan for now is 6 and then another CAT to stage the cancer and see if it’s still there and needs 2 more. Of course if it’s still there after 8 they will keep going till it’s gone but that most likely won’t be the case with Darell. Hodgkin’s disease is curable but the treatments use to cure it can cause other cancers down the road. Since Darell has adrenal issues this puts him at higher odds of having another cancer type down the road. At least we know that and will keep a pro-active process going to be on the lookout for any problems.

His eye was not looking so great yesterday so they increased his shingles medicine to fight the virus. I am sure he would like to be done with that as well.

David is doing great. Grandpa has been with us this week and David loves it. I think grandpa maybe getting tired but we know he loves spending the time with David as well. I think David is getting cabin fever and ready for summertime and being outside more. He is doing really well with the potty training. He is now telling us when he needs to go and has even waked up several mornings dry. We are well on our way.

Darell is at his 5th chemo at the moment. His dad is with him today. I hope that Darell doesn’t get as wiped out this time. If he is wiped again I think he is going to take Monday off from work. He can’t get that run down again; other bad things can happen to him if he gets too wiped out.

Come on Spring!

We had a nice weekend. Saturday took a change in plans for us. We headed out the door heading to Woodland Park Zoo. Well after we got our over priced gas it started raining. We started thinking of plan ‘B’ as we drove north. When we got to the 167 / 405 interchange and traffic was not moving we decided to stop at Uncle Aaron’s for a visit. We had packed a sack lunch for the zoo and since it was 12:30 we thought we would eat at Aaron’s. Grandma and Grandpa were there when we got there so we got to visiting and helping Aaron with a project in his gym. Before we knew it, it was almost 3:00 and too late to go to the zoo. It was still raining as well so went out to eat with them. It was nice to have a day of visiting.

Yesterday the sun finally made an appearance. Yahhh! Since we have a busy week we opted to stay at home and get some things done. Darell felt pretty good. We got our stuff done and went outside. David loves it outside. He and daddy played in the backyard while I did some weeding. We could hear kids playing out-front so we went to join in. It was one of the first nice evenings of the season and everyone was outside. Soon an unplanned BBQ started to take place. We had our dinner planned at home but went back out when we were done. The kids all played and it was nice to visit with the neighbors. Several of our neighbors are moving in the near future. They will be missed. It is so great to live on our street with the neighbors all getting along and the kids all playing outside together. We hope that the new neighbors we get just fit right in.

We have a busy week this week. David has school tonight. Tomorrow night Darell is going to the M’s game with his dad and brother. While he is at the game I have a work meeting, should be interesting since I am taking David. We are going to try having it at a Burger King with a Play Area. Wednesday we get the CAT scan results to see what effect the chemo is having. Then Thursday is chemo. The rest of the week is for Darell to rebound from the chemo. Of course there is always David’s therapy classes in there and Mother’s Day. It is a very full week. Somewhere in there I manage to work 30 to 40 hours from home. I may need a nap at some point.

His Eyes Don't Have It...

Tuesday was eye doctor day. Even though Darell’s left eye does not hurt him anymore it continues to cause him problems. There are still 2 active shingles in it and a lot of scare tissue. Currently Darell cannot see clearly from his left eye. He sees blurry or double vision but when it works with his right eye he can see. Crazy, but his right eye is basically working for both of them. So he is back on more eye drops to try and defeat the shingles again. Then we are onto wait and see how his vision clears up after that. His vision issues can be from the medicines he is on or from the scare tissue or both. We won’t know for awhile. It could clear up; need a different prescription for his glasses or possibly surgery.

His energy is still not back but better then last week. His next chemo is on the 8th. On Wednesday we see his oncologist to get the results of the CAT scan. We pray that he will only need six chemo treatments not eight or more. I think we are going to do something fun this weekend since he has a little energy. With next weekend being Mother’s Day we know that he will be taking it easy from the chemo treatment. He has a busy week next week with a Mariner’s game with his dad and brother on Tuesday. Doctor’s appointment Wednesday and then chemo on Thursday will just wipe him out again.

David is doing well. He has been a handful but I think he just needs to play outside if spring would finally get here. His new food group is great. He is making an effort in class and we are able to add a few more things at home. He has a long way to go but I think we are moving forward some. I meet with our school district person next week to talk about screening him for developmental preschool in the fall. I really hope he qualifies. School will be so good for him but he needs the structured environment and trained teachers that know how to deal with his sensory issues. He is a smart little boy but he is challenged by himself.

People have asked me what about me? Well I just try and make it from day to day. I have long pasted the point of being tired.